Category: Uncategorized
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Realities
Read more: RealitiesI’ve been getting a lot of messages asking how Katja is doing, what went wrong and general curiosity. We appreciate everyone’s concerns for her. I wish we had answers. I’ve waited days to post this because there isn’t much to answer. This is the reality of doing something only 40ish kids in the world have…
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Headaches & Steroids
Read more: Headaches & SteroidsThat is all that is keeping us here. Headaches and steroids. Katja is doing amazing from a heart standpoint. Her function looks great and she has so much energy. She’s been walking around the hospital for the last 4 days, enjoying the sights, the gardens and meeting new heart friends. Her appetite is returning to…
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Update
Read more: UpdateUpdate: Heart has arrived. Everything so far is looking really good. They need to double check blood typing, antibodies and a few other things. They were hoping to get that completed by this evening for a midnight surgery but unfortunately the lab is taking longer than anticipated. Surgery was moved to tomorrow morning with a…
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The Ugly Side of CHD
Read more: The Ugly Side of CHDI know updates have been spaced and limited in information. I wish I could say it’s because we are happily enjoying our time on the East Coast or it’s because we are spending quality time with the kids. It’s not and the reality of it all is pretty depressing. However, I had a realization the…
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When Stars Align
Read more: When Stars AlignTo say the last 3 weeks have been absolutely insane would be an understatement. We arrived in North Carolina to be greeted by Tropical Storm Chantel and multiple days of thunderstorms after. With all the flooding in the area and hotel issues, we were forced to move hotels, not once but twice in the span…
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Tick Tick
Read more: Tick TickIt’s been a long week. Shortly after we arrived Katja crashed and went to bed early. The next morning she was completely exhausted. Very tired and crabby. We were prepared for her having some jet lag but this was much worse. Over the next week her appetite disappeared (she’s on medication to stimulate it), she…
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Up Up and Away
Read more: Up Up and AwayWriting this from inside a plane that up until 48hrs ago I never thought we’d achieve, is a bit surreal. I think we as a family are still very much processing everything that just happened. From feeling hopeless just a few days ago, discussing emergency back up plans that we knew had significant risks to…
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Thank You
Read more: Thank YouWe are beyond grateful for all the people that reached out to us and the media to make this happen. Thank you all so so much! Kiro 7 King 5 (click to watch) https://www.king5.com/embeds/video/responsive/281-fc70c02e-2332-47b6-b696-7ba27a8c0679/iframe
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Katja Needs Your Help!
Read more: Katja Needs Your Help!The waiting is the hardest part, honestly it is. Katja got to watch her big sister Nevaeh graduate (thanks to the kindness of the Angel of the Winds arena). We were able to breeze her in a separate exit, avoid all the crowds and take her right to an isolated box suite. She was able…
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The Calm In Our Storm
Read more: The Calm In Our StormA question I get asked often is “How are you so calm about Katja?” The answer is, well, complicated. To understand why we take all of this in stride, you first have to understand Katja’s journey. We found out at 19 weeks pregnant that Katja’s heart was not “normal”. We had months to learn, prepare…
Confessions of a Mended Heart 