Category: Uncategorized


  • The Calm In Our Storm

    The Calm In Our Storm


    A question I get asked often is “How are you so calm about Katja?” The answer is, well, complicated. To understand why we take all of this in stride, you first have to understand Katja’s journey. We found out at 19 weeks pregnant that Katja’s heart was not “normal”. We had months to learn, prepare…

    Read more: The Calm In Our Storm
  • A Partial Gift With Significant Risks-PHT

    A Partial Gift With Significant Risks-PHT


    That big “T” word that makes everyone’s heart flutter just a bit. It’s scary, it’s unknown but when it’s spoken out loud, you just know, something is wrong. Transplant. There I said it. Did your heart skip a beat? Mine does, every time and I’ve been saying it a lot lately. So let’s talk about…

    Read more: A Partial Gift With Significant Risks-PHT
  • Save Katja’s Heart: Urgent Flight for a Rare Transplant


    Help Katja! Spread the word! https://gofund.me/33c1e6e5

    Read more: Save Katja’s Heart: Urgent Flight for a Rare Transplant
  • That walker is made for walking

    That walker is made for walking


    It’s been awhile. I’d say there is so much to catch up on but honestly, it’s just been 9 months of tough work. Katja has spent the last 12 months in a wheelchair. Both for her lack of function and safety. She’s received therapy (PT, OT and Aquatic) 4-5 days a week for the last…

    Read more: That walker is made for walking
  • She’S Out!!!


    7 days Post Op and she’s out of the hospital and resting comfortably back at the Bon (hospital housing).

    Read more: She’S Out!!!
  • Here we go again


    Well if all the chaos wasn’t enough, I received a call from her surgeon today. They had to move the date again. All her pre-op testing was moved to Tuesday (20th) with surgery now set for Wednesday (21st). Lots of moving pieces and reason why that I don’t have a chance to go into but…

    Read more: Here we go again

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

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