Welcome!


Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:

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  • Untitled post 1151

    Update: Closing her took slightly longer than expected but she is finally in recovery. We should be allowed back soon to see her. Everything looks really good. Both her surgeons are very happy with the results. I wish I could say “the hard part is over” but the next 48hrs are critical for her. Her…

    Read more: untitled post 1151
  • She’s done!

    She’s done!


    Katja is off Bypass and her heart is doing great! Everything looks perfect. She’s being closed up and sent to recovery soon. 💜

    Read more: She’s done!
  • Phase 2

    Phase 2


    Katja has now been placed on Bypass. Her body is being supported by the machine. Over the next few hours, her surgeons will disconnect her Aortic root and pulmonary artery. They will replace them with the living donor tissue. The most critical stage will follow after, getting her off Bypass and allowing the heart to…

    Read more: Phase 2

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

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