Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:
It’s official! We are finally heading home after 10w2d, that’s 2.5 months of being on the East Coast 😱
We are beyond grateful for all the love and support. Katja received a special private flight home 🚀
We’ll see you tomorrow afternoon Seattle with the PNW and Childrens National’s 1st Domino Partial Heart Transplant kid! 😉
Katja has now been placed on Bypass. Her body is being supported by the machine. Over the next few hours, her surgeons will disconnect her Aortic root and pulmonary artery. They will replace them with the living donor tissue. The most critical stage will follow after, getting her off Bypass and allowing the heart to…
We have first incision. Surgery has started and is progressing well. ❤️
There was a bit of a delay this morning as another heart warrior received a full heart transplant. Katja is now back and prep for surgery has begun. Now we wait …. ❤️❤️❤️
We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).
Save Katja’s Heart: Urgent Flight for a Rare Transplant
Help us help Katja!
Confessions of a Mended Heart 