Welcome!


Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:

Updates



More Updates

  • And now our watch begins

    And now our watch begins


    We have a very long night ahead but she’s stable and doing really well.

    Read more: And now our watch begins
  • home Is where the heart is but our hearts are with her

    home Is where the heart is but our hearts are with her


    Katja had a lot of calcification in her Ozaki, along with some issues that were not addressed in her previous surgeries (one of her pulmonary branch arteries has been blocked since birth apparently). Dr Baird had to remove everything and start over for both her aortic and pulmonary repairs, thus the extended time today. When…

    Read more: home Is where the heart is but our hearts are with her
  • the Beat goes on

    the Beat goes on


    Katja is off Bypass! We are waiting on the update from her surgeon now. Hopefully she’ll be closed up and in recovery in the next 2hrs. I’ll update as soon as her Dr talks to us.

    Read more: the Beat goes on

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

Help us help Katja!

Search our Blog


Subscribe


Recent Updates


Recent Posts