As always, Katja is unstoppable 🤗She’s being discharged early. She was up within 2hrs of surgery walking around the unit yesterday. She’s eating great , pain is minimal and she’s in good spirits. So she gets to come home today. She is such a Warrior 💪🏻
Welcome!
Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:
Updates
More Updates
-
givIng up is not an option
Read more: givIng up is not an optionToday was a step back. Today was hard. Today was exhausting. Today will hopefully be tomorrow’s memory. Katja has been in severe pain since 6am. Even with a lot of Dilaudid on board. Around 10am, I did what I do best…. I went into Mama Bear mode 😡 By 10:25am the entire unit was outside…
-
Popsicles and pain
Read more: Popsicles and painIt was a long night for Katja. She was pulled off a majority of her meds and started on oral medication. Unfortunately with her sedation finally wearing off she’s in a lot of pain, which is spiking her blood pressure.We’ve talked to the team and gone through a lot of different options but it seems…
-
determination is her strong suit
Read more: determination is her strong suitTo say “this kid is a RockStar” would be an understatement. I am in awe of her. She is a warrior. When she decides something, nothing will stop her. Absolutely nothing. She has been breaking through sedation since a few hours out of surgery. Giving us all her fiesty sass and her famous raised eyebrows.…
Confessions of a Mended Heart 