Tag: Truncus
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What’s life without a little chaos
Read more: What’s life without a little chaosIt’s the 10 day count down! Things here have been super busy. Lots of end of school year activities, last minute appointments and getting everyone ready for us leaving. We’ve been trying our hardest to keep Katja’s day to day as normal as possible but with the heat and her heart, she’s been pretty tired/crabby.…
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Echos of the Heart
Read more: Echos of the HeartLatest Heart Echo update
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No Growth In 5 Days!
Read more: No Growth In 5 Days!Katja’s cultures for endocarditis came back
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We have Dates for OHS #3
Read more: We have Dates for OHS #3Katja seems to be a little better. We had an ER visit last week after she spiked multiple high fevers a week apart. Her Cardiology team was worried about endocarditis.
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ADHD and Heart kids
Read more: ADHD and Heart kidsChildren that have gone under bypass are 5 times more likely to develop ADHD.
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Unforeseen Complications. What is Post Pump Chorea?
Read more: Unforeseen Complications. What is Post Pump Chorea?Complication. It’s a word no parent ever wants to hear after surgery.
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What is an Ozaki? Katja’s 2nd OHS was complicated.
Read more: What is an Ozaki? Katja’s 2nd OHS was complicated.During an Ozaki procedure the diseased aortic valve leaflets are removed, and a new aortic valve is recreated by sewing the leaflets into the aortic valve, providing a new functioning valve.
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Mending Katja’s Heart Part 2
Read more: Mending Katja’s Heart Part 2To say this journey hasn’t been difficult would be a lie.
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How is TA Repaired? Mending Katja’s heart Part 1
Read more: How is TA Repaired? Mending Katja’s heart Part 1So we’ll talk a bit about Katja’s initial “repair” and how that relates to her future surgeries.
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About Katja
Read more: About KatjaKatarina Anja or as we affectionately call her “Katja” was born with a rare CHD called “Truncus Arteriosus” (TA). This means that Katja was born with only one artery into her heart.
Confessions of a Mended Heart 