Confessions of a Mended Heart

Katja's Journey to (W)hole Heartedness

Tag: Truncus

  • Heart Block

    Heart Block

    Katja was given discharge instructions for tomorrow and then her heart decided otherwise… Late this afternoon she started having irregular beats that progressed to full 3 second skips. She developed Heart Block shortly after. She was urgently moved back to the CICU. Discussions about operating to put her pace wires back in, urgent echos and…

    Read more: Heart Block
  • Headaches & Steroids

    Headaches & Steroids

    That is all that is keeping us here. Headaches and steroids. Katja is doing amazing from a heart standpoint. Her function looks great and she has so much energy. She’s been walking around the hospital for the last 4 days, enjoying the sights, the gardens and meeting new heart friends. Her appetite is returning to…

    Read more: Headaches & Steroids
  • Can’t Keep Her Down

    Can’t Keep Her Down

    In usual Katja style, she isn’t going to let a bad afternoon keep her down. By late this afternoon she was feeling so much better, she asked to go see the Gardens. ❤️

    Read more: Can’t Keep Her Down
  • The Curse Of Day 3

    The Curse Of Day 3

    If you’ve followed Katja’s journey in the past, you’ll remember the curse of Day 3. If not you can read about it in her blog updates under “Giving up is not an option”. For some reason after every ohs on Day 3 we hit a pain wall and have a set back. I try so…

    Read more: The Curse Of Day 3
  • A Feisty Warrior

    A Feisty Warrior

    It’s been a long night. I haven’t slept more than 3hrs in the last 3 days. Katja had a bumpy night. Her body is still having a hard time purging the additional CO2 from Bypass. Her blood gases have been really high all night. With all her rejection meds, steroids and epi her glucose was…

    Read more: A Feisty Warrior
  • The Wait Begins

    The Wait Begins

    There was a bit of a delay this morning as another heart warrior received a full heart transplant. Katja is now back and prep for surgery has begun. Now we wait …. ❤️❤️❤️

    Read more: The Wait Begins
  • Roller Coaster

    Roller Coaster

    Here we go again… Welcome to our Roller Coaster! Call just came in. Potential heart and to prepare for surgery at Midnight tonight. We should know around dinner (though she can’t eat) if it’s good for transplant. Please pray for Katja that this is the one! ❤️

    Read more: Roller Coaster
  • The Ugly Side of CHD

    The Ugly Side of CHD

    I know updates have been spaced and limited in information. I wish I could say it’s because we are happily enjoying our time on the East Coast or it’s because we are spending quality time with the kids. It’s not and the reality of it all is pretty depressing. However, I had a realization the…

    Read more: The Ugly Side of CHD
  • Losing Faith

    Losing Faith

    Update: Heart arrived and it wasn’t good enough for transplant. Katja’s surgery was cancelled and we are back to waiting 😔

    Read more: Losing Faith
  • When Stars Align

    When Stars Align

    To say the last 3 weeks have been absolutely insane would be an understatement. We arrived in North Carolina to be greeted by Tropical Storm Chantel and multiple days of thunderstorms after. With all the flooding in the area and hotel issues, we were forced to move hotels, not once but twice in the span…

    Read more: When Stars Align

About Us

We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

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