Tag: Post Pump Chorea
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Answers come to those who wait
Read more: Answers come to those who waitAnd wait we have. Over 5 years to be exact and while we didn’t necessarily learn anything new, we have new perspective on what we do know. Let me back track slightly to last night. Katja’s labs, X-ray and testing were all negative. She did test positive for Rhinovirus (common cold). Add to that a…
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Can We Get A Break?
Read more: Can We Get A Break?I wish I could say that our Redeye to Boston was uneventful but what would my complex warrior be, if not even more complex? Katja decided mid-flight to start coughing like crazy and send her O2 into the 80s. Lots of Albuterol, steroids and scaring the living daylights out of Mom and we were able…
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Boston Round 2
Read more: Boston Round 2We officially have dates for our 2nd trip to Boston. Katja and I will be flying out via a redeye Dec 3rd and returning Dec 7th (if additional testing isn’t required). Her appointments with Neurology and Cardiology are Dec 5th. Cardiology just wanted a check in since we’ll be there anyway. So far we’ve tried…
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Stages of Grief with a complex child
Read more: Stages of Grief with a complex childIt’s taken me a long time to write this. I wish I could have found the words sooner but the many stages of grief have been difficult. I’ve been in denial. Hoping that what I’ve been seeing was just my imagination. If we pretended everything was okay, then it would be… Right? Guilt for not…
Confessions of a Mended Heart 