Tag: Partial Heart Transplant


  • Heart Block

    Heart Block


    Katja was given discharge instructions for tomorrow and then her heart decided otherwise… Late this afternoon she started having irregular beats that progressed to full 3 second skips. She developed Heart Block shortly after. She was urgently moved back to the CICU. Discussions about operating to put her pace wires back in, urgent echos and…

    Read more: Heart Block
  • Headaches & Steroids

    Headaches & Steroids


    That is all that is keeping us here. Headaches and steroids. Katja is doing amazing from a heart standpoint. Her function looks great and she has so much energy. She’s been walking around the hospital for the last 4 days, enjoying the sights, the gardens and meeting new heart friends. Her appetite is returning to…

    Read more: Headaches & Steroids
  • Can’t Keep Her Down

    Can’t Keep Her Down


    In usual Katja style, she isn’t going to let a bad afternoon keep her down. By late this afternoon she was feeling so much better, she asked to go see the Gardens. ❤️

    Read more: Can’t Keep Her Down
  • The Curse Of Day 3

    The Curse Of Day 3


    If you’ve followed Katja’s journey in the past, you’ll remember the curse of Day 3. If not you can read about it in her blog updates under “Giving up is not an option”. For some reason after every ohs on Day 3 we hit a pain wall and have a set back. I try so…

    Read more: The Curse Of Day 3
  • Goal Smasher

    Goal Smasher


    Katja didn’t spend yesterday progressing… She spent it leaping past her goals 😳 Within 2hrs of her mask being reduced to nasal cannula, Katja got up. OT came in to see how she was doing and she decided she’d had enough laying flat watching Moana 2. She made the 6 steps over to a chair…

    Read more: Goal Smasher
  • A Feisty Warrior

    A Feisty Warrior


    It’s been a long night. I haven’t slept more than 3hrs in the last 3 days. Katja had a bumpy night. Her body is still having a hard time purging the additional CO2 from Bypass. Her blood gases have been really high all night. With all her rejection meds, steroids and epi her glucose was…

    Read more: A Feisty Warrior
  • The Long Night

    The Long Night


    We have a long night ahead of us… But she’s already breaking through sedation and complaining about her mask squishing her nose. She is already extubated, pace wires are in but so far not needed. Some of her blood work is a little high and we’ll spend the evening getting that in order but she’s…

    Read more: The Long Night
  • The Wait Begins

    The Wait Begins


    There was a bit of a delay this morning as another heart warrior received a full heart transplant. Katja is now back and prep for surgery has begun. Now we wait …. ❤️❤️❤️

    Read more: The Wait Begins
  • We Got a Heart!

    We Got a Heart!


    The Heart is Good!! ❤️🧡💛💚🩵💜 Katja will be heading back for her Partial Heart Transplant in 30 mins. Please pray for her. It will be a really long day. I will update here, her GFM and her blog as I get updates from the OR. They will be limited and pretty spaced out. Surgery will…

    Read more: We Got a Heart!
  • Roller Coaster

    Roller Coaster


    Here we go again… Welcome to our Roller Coaster! Call just came in. Potential heart and to prepare for surgery at Midnight tonight. We should know around dinner (though she can’t eat) if it’s good for transplant. Please pray for Katja that this is the one! ❤️

    Read more: Roller Coaster

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

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