Tag: Partial Heart Transplant
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A Feisty Warrior
Read more: A Feisty WarriorIt’s been a long night. I haven’t slept more than 3hrs in the last 3 days. Katja had a bumpy night. Her body is still having a hard time purging the additional CO2 from Bypass. Her blood gases have been really high all night. With all her rejection meds, steroids and epi her glucose was…
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The Long Night
Read more: The Long NightWe have a long night ahead of us… But she’s already breaking through sedation and complaining about her mask squishing her nose. She is already extubated, pace wires are in but so far not needed. Some of her blood work is a little high and we’ll spend the evening getting that in order but she’s…
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The Wait Begins
Read more: The Wait BeginsThere was a bit of a delay this morning as another heart warrior received a full heart transplant. Katja is now back and prep for surgery has begun. Now we wait …. ❤️❤️❤️
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We Got a Heart!
Read more: We Got a Heart!The Heart is Good!! ❤️🧡💛💚🩵💜 Katja will be heading back for her Partial Heart Transplant in 30 mins. Please pray for her. It will be a really long day. I will update here, her GFM and her blog as I get updates from the OR. They will be limited and pretty spaced out. Surgery will…
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Roller Coaster
Read more: Roller CoasterHere we go again… Welcome to our Roller Coaster! Call just came in. Potential heart and to prepare for surgery at Midnight tonight. We should know around dinner (though she can’t eat) if it’s good for transplant. Please pray for Katja that this is the one! ❤️
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The Ugly Side of CHD
Read more: The Ugly Side of CHDI know updates have been spaced and limited in information. I wish I could say it’s because we are happily enjoying our time on the East Coast or it’s because we are spending quality time with the kids. It’s not and the reality of it all is pretty depressing. However, I had a realization the…
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Losing Faith
Read more: Losing FaithUpdate: Heart arrived and it wasn’t good enough for transplant. Katja’s surgery was cancelled and we are back to waiting 😔
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Pins N Needles
Read more: Pins N NeedlesReceived a call this morning to be “on alert” as a “potential” heart has been found. It’s in bound. The team needs to ensure it’s “good for transplant” if it is, surgery would be tomorrow or Friday. Pray extra hard, that this is it and not a false alarm. This poor kid can’t go through…
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When Stars Align
Read more: When Stars AlignTo say the last 3 weeks have been absolutely insane would be an understatement. We arrived in North Carolina to be greeted by Tropical Storm Chantel and multiple days of thunderstorms after. With all the flooding in the area and hotel issues, we were forced to move hotels, not once but twice in the span…
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Tick Tick
Read more: Tick TickIt’s been a long week. Shortly after we arrived Katja crashed and went to bed early. The next morning she was completely exhausted. Very tired and crabby. We were prepared for her having some jet lag but this was much worse. Over the next week her appetite disappeared (she’s on medication to stimulate it), she…
Confessions of a Mended Heart 