Tag: Heart Defect


  • We have Dates for OHS #3

    We have Dates for OHS #3


    Katja seems to be a little better. We had an ER visit  last week after she spiked multiple high fevers a week apart. Her Cardiology team was worried about endocarditis.

    Read more: We have Dates for OHS #3
  • ADHD and Heart kids

    ADHD and Heart kids


    Children that have gone under bypass are 5 times more likely to develop ADHD.

    Read more: ADHD and Heart kids
  • Unforeseen Complications. What is Post Pump Chorea?

    Unforeseen Complications. What is Post Pump Chorea?


    Complication. It’s a word no parent ever wants to hear after surgery.

    Read more: Unforeseen Complications. What is Post Pump Chorea?
  • What is an Ozaki? Katja’s 2nd OHS was complicated.

    What is an Ozaki? Katja’s 2nd OHS was complicated.


    During an Ozaki procedure the diseased aortic valve leaflets are removed, and a new aortic valve is recreated by sewing the leaflets into the aortic valve, providing a new functioning valve.

    Read more: What is an Ozaki? Katja’s 2nd OHS was complicated.
  • Mending Katja’s Heart Part 2

    Mending Katja’s Heart Part 2


    To say this journey hasn’t been difficult would be a lie.

    Read more: Mending Katja’s Heart Part 2
  • How is TA Repaired? Mending Katja’s heart Part 1

    How is TA Repaired? Mending Katja’s heart Part 1


    So we’ll talk a bit about Katja’s initial “repair” and how that relates to her future surgeries.

    Read more: How is TA Repaired? Mending Katja’s heart Part 1
  • About Katja

    About Katja


    Katarina Anja or as we affectionately call her “Katja” was born with a rare CHD called “Truncus Arteriosus” (TA). This means that Katja was born with only one artery into her heart.

    Read more: About Katja

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

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