Tag: Heart Defect
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Roller Coaster
Read more: Roller CoasterHere we go again… Welcome to our Roller Coaster! Call just came in. Potential heart and to prepare for surgery at Midnight tonight. We should know around dinner (though she can’t eat) if it’s good for transplant. Please pray for Katja that this is the one! ❤️
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The Ugly Side of CHD
Read more: The Ugly Side of CHDI know updates have been spaced and limited in information. I wish I could say it’s because we are happily enjoying our time on the East Coast or it’s because we are spending quality time with the kids. It’s not and the reality of it all is pretty depressing. However, I had a realization the…
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Losing Faith
Read more: Losing FaithUpdate: Heart arrived and it wasn’t good enough for transplant. Katja’s surgery was cancelled and we are back to waiting 😔
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When Stars Align
Read more: When Stars AlignTo say the last 3 weeks have been absolutely insane would be an understatement. We arrived in North Carolina to be greeted by Tropical Storm Chantel and multiple days of thunderstorms after. With all the flooding in the area and hotel issues, we were forced to move hotels, not once but twice in the span…
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Tick Tick
Read more: Tick TickIt’s been a long week. Shortly after we arrived Katja crashed and went to bed early. The next morning she was completely exhausted. Very tired and crabby. We were prepared for her having some jet lag but this was much worse. Over the next week her appetite disappeared (she’s on medication to stimulate it), she…
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Up Up and Away
Read more: Up Up and AwayWriting this from inside a plane that up until 48hrs ago I never thought we’d achieve, is a bit surreal. I think we as a family are still very much processing everything that just happened. From feeling hopeless just a few days ago, discussing emergency back up plans that we knew had significant risks to…
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To You Amazing People
Read more: To You Amazing People*****UPDATE***** Katja’s flight to North Carolina has been fully funded! With the help of all of you amazing donors! We’ll be flying out on Friday to await her partial heart transplant at a hotel by Duke Children’s hospital. We are still working on her return flight when she will be post surgery on full immunosuppressants…
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Thank You
Read more: Thank YouWe are beyond grateful for all the people that reached out to us and the media to make this happen. Thank you all so so much! Kiro 7 King 5 (click to watch) https://www.king5.com/embeds/video/responsive/281-fc70c02e-2332-47b6-b696-7ba27a8c0679/iframe
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Katja Needs Your Help!
Read more: Katja Needs Your Help!The waiting is the hardest part, honestly it is. Katja got to watch her big sister Nevaeh graduate (thanks to the kindness of the Angel of the Winds arena). We were able to breeze her in a separate exit, avoid all the crowds and take her right to an isolated box suite. She was able…
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The Calm In Our Storm
Read more: The Calm In Our StormA question I get asked often is “How are you so calm about Katja?” The answer is, well, complicated. To understand why we take all of this in stride, you first have to understand Katja’s journey. We found out at 19 weeks pregnant that Katja’s heart was not “normal”. We had months to learn, prepare…
Confessions of a Mended Heart 