Tag: Children’s National DC
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Home Sweet Home
Read more: Home Sweet HomeIt’s official! We are finally heading home after 10w2d, that’s 2.5 months of being on the East Coast 😱 We are beyond grateful for all the love and support. Katja received a special private flight home 🚀 We’ll see you tomorrow afternoon Seattle with the PNW and Childrens National’s 1st Domino Partial Heart Transplant kid!…
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Get Outta Here
Read more: Get Outta HereAnd we are finally FREE!
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Headaches & Steroids
Read more: Headaches & SteroidsThat is all that is keeping us here. Headaches and steroids. Katja is doing amazing from a heart standpoint. Her function looks great and she has so much energy. She’s been walking around the hospital for the last 4 days, enjoying the sights, the gardens and meeting new heart friends. Her appetite is returning to…
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Can’t Keep Her Down
Read more: Can’t Keep Her DownIn usual Katja style, she isn’t going to let a bad afternoon keep her down. By late this afternoon she was feeling so much better, she asked to go see the Gardens. ❤️
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The Curse Of Day 3
Read more: The Curse Of Day 3If you’ve followed Katja’s journey in the past, you’ll remember the curse of Day 3. If not you can read about it in her blog updates under “Giving up is not an option”. For some reason after every ohs on Day 3 we hit a pain wall and have a set back. I try so…
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Goal Smasher
Read more: Goal SmasherKatja didn’t spend yesterday progressing… She spent it leaping past her goals 😳 Within 2hrs of her mask being reduced to nasal cannula, Katja got up. OT came in to see how she was doing and she decided she’d had enough laying flat watching Moana 2. She made the 6 steps over to a chair…
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A Feisty Warrior
Read more: A Feisty WarriorIt’s been a long night. I haven’t slept more than 3hrs in the last 3 days. Katja had a bumpy night. Her body is still having a hard time purging the additional CO2 from Bypass. Her blood gases have been really high all night. With all her rejection meds, steroids and epi her glucose was…
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The Long Night
Read more: The Long NightWe have a long night ahead of us… But she’s already breaking through sedation and complaining about her mask squishing her nose. She is already extubated, pace wires are in but so far not needed. Some of her blood work is a little high and we’ll spend the evening getting that in order but she’s…
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The Wait Begins
Read more: The Wait BeginsThere was a bit of a delay this morning as another heart warrior received a full heart transplant. Katja is now back and prep for surgery has begun. Now we wait …. ❤️❤️❤️
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We Got a Heart!
Read more: We Got a Heart!The Heart is Good!! ❤️🧡💛💚🩵💜 Katja will be heading back for her Partial Heart Transplant in 30 mins. Please pray for her. It will be a really long day. I will update here, her GFM and her blog as I get updates from the OR. They will be limited and pretty spaced out. Surgery will…
Confessions of a Mended Heart 