Confessions of a Mended Heart

Katja's Journey to (W)hole Heartedness

Tag: CHD

  • Headaches & Steroids

    Headaches & Steroids

    That is all that is keeping us here. Headaches and steroids. Katja is doing amazing from a heart standpoint. Her function looks great and she has so much energy. She’s been walking around the hospital for the last 4 days, enjoying the sights, the gardens and meeting new heart friends. Her appetite is returning to…

    Read more: Headaches & Steroids
  • Can’t Keep Her Down

    Can’t Keep Her Down

    In usual Katja style, she isn’t going to let a bad afternoon keep her down. By late this afternoon she was feeling so much better, she asked to go see the Gardens. ❤️

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  • The Curse Of Day 3

    The Curse Of Day 3

    If you’ve followed Katja’s journey in the past, you’ll remember the curse of Day 3. If not you can read about it in her blog updates under “Giving up is not an option”. For some reason after every ohs on Day 3 we hit a pain wall and have a set back. I try so…

    Read more: The Curse Of Day 3
  • Goal Smasher

    Goal Smasher

    Katja didn’t spend yesterday progressing… She spent it leaping past her goals 😳 Within 2hrs of her mask being reduced to nasal cannula, Katja got up. OT came in to see how she was doing and she decided she’d had enough laying flat watching Moana 2. She made the 6 steps over to a chair…

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  • The Long Night

    The Long Night

    We have a long night ahead of us… But she’s already breaking through sedation and complaining about her mask squishing her nose. She is already extubated, pace wires are in but so far not needed. Some of her blood work is a little high and we’ll spend the evening getting that in order but she’s…

    Read more: The Long Night
  • The Wait Begins

    The Wait Begins

    There was a bit of a delay this morning as another heart warrior received a full heart transplant. Katja is now back and prep for surgery has begun. Now we wait …. ❤️❤️❤️

    Read more: The Wait Begins
  • Roller Coaster

    Roller Coaster

    Here we go again… Welcome to our Roller Coaster! Call just came in. Potential heart and to prepare for surgery at Midnight tonight. We should know around dinner (though she can’t eat) if it’s good for transplant. Please pray for Katja that this is the one! ❤️

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  • The Ugly Side of CHD

    The Ugly Side of CHD

    I know updates have been spaced and limited in information. I wish I could say it’s because we are happily enjoying our time on the East Coast or it’s because we are spending quality time with the kids. It’s not and the reality of it all is pretty depressing. However, I had a realization the…

    Read more: The Ugly Side of CHD
  • Losing Faith

    Losing Faith

    Update: Heart arrived and it wasn’t good enough for transplant. Katja’s surgery was cancelled and we are back to waiting 😔

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  • Pins N Needles

    Pins N Needles

    Received a call this morning to be “on alert” as a “potential” heart has been found. It’s in bound. The team needs to ensure it’s “good for transplant” if it is, surgery would be tomorrow or Friday. Pray extra hard, that this is it and not a false alarm. This poor kid can’t go through…

    Read more: Pins N Needles

About Us

We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

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