Mending a Heart
The timeline of mending Katja’s heart
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read more: About Katja
Katarina Anja or as we affectionately call her “Katja” was born with a rare CHD called “Truncus Arteriosus” (TA). This means that Katja was born with only one artery into her heart.
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read more: How is TA Repaired? Mending Katja’s heart Part 1
So we’ll talk a bit about Katja’s initial “repair” and how that relates to her future surgeries.
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read more: Mending Katja’s Heart Part 2
To say this journey hasn’t been difficult would be a lie.
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read more: What is an Ozaki? Katja’s 2nd OHS was complicated.
During an Ozaki procedure the diseased aortic valve leaflets are removed, and a new aortic valve is recreated by sewing the leaflets into the aortic valve, providing a new functioning valve.
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read more: Unforeseen Complications. What is Post Pump Chorea?
Complication. It’s a word no parent ever wants to hear after surgery.
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read more: ADHD and Heart kids
Children that have gone under bypass are 5 times more likely to develop ADHD.
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read more: Can you Cure a broken heart?
I don’t know but I’m willing to find out……. Katja was doing great. She had made the transition from wheelchair to walker and was slowly building her endurance back up. Her Chorea was still progressing but at a slower rate. We decided to have a talk with her Neurology team at Boston and finally caved…
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read more: A Partial Gift With Significant Risks-PHT
That big “T” word that makes everyone’s heart flutter just a bit. It’s scary, it’s unknown but when it’s spoken out loud, you just know, something is wrong. Transplant. There I said it. Did your heart skip a beat? Mine does, every time and I’ve been saying it a lot lately. So let’s talk about…
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About Us
We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).
Save Katja’s Heart: Urgent Flight for a Rare Transplant
Help us help Katja!
Confessions of a Mended Heart 