Category: Updates


  • The last minute shuffle

    The last minute shuffle


    With all the chaos going on before we leave (I’m looking at you refrigerator that decided to break down yesterday 😑) what’s a little last minute date shuffle? Received the call this morning that the surgery date has been moved from Friday (June 23rd) to Thursday (22nd). Looks like we won’t make Legoland before surgery…

    Read more: The last minute shuffle
  • What’s life without a little chaos

    What’s life without a little chaos


    It’s the 10 day count down! Things here have been super busy. Lots of end of school year activities, last minute appointments and getting everyone ready for us leaving. We’ve been trying our hardest to keep Katja’s day to day as normal as possible but with the heat and her heart, she’s been pretty tired/crabby.…

    Read more: What’s life without a little chaos
  • Echos of the Heart

    Echos of the Heart


    Latest Heart Echo update

    Read more: Echos of the Heart
  • No Growth In 5 Days!

    No Growth In 5 Days!


    Katja’s cultures for endocarditis came back

    Read more: No Growth In 5 Days!
  • We have Dates for OHS #3

    We have Dates for OHS #3


    Katja seems to be a little better. We had an ER visit  last week after she spiked multiple high fevers a week apart. Her Cardiology team was worried about endocarditis.

    Read more: We have Dates for OHS #3

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

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