Category: Updates
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The last minute shuffle
Read more: The last minute shuffleWith all the chaos going on before we leave (I’m looking at you refrigerator that decided to break down yesterday 😑) what’s a little last minute date shuffle? Received the call this morning that the surgery date has been moved from Friday (June 23rd) to Thursday (22nd). Looks like we won’t make Legoland before surgery…
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What’s life without a little chaos
Read more: What’s life without a little chaosIt’s the 10 day count down! Things here have been super busy. Lots of end of school year activities, last minute appointments and getting everyone ready for us leaving. We’ve been trying our hardest to keep Katja’s day to day as normal as possible but with the heat and her heart, she’s been pretty tired/crabby.…
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Echos of the Heart
Read more: Echos of the HeartLatest Heart Echo update
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No Growth In 5 Days!
Read more: No Growth In 5 Days!Katja’s cultures for endocarditis came back
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We have Dates for OHS #3
Read more: We have Dates for OHS #3Katja seems to be a little better. We had an ER visit last week after she spiked multiple high fevers a week apart. Her Cardiology team was worried about endocarditis.




