Category: Mending a Heart


  • A Partial Gift With Significant Risks-PHT

    A Partial Gift With Significant Risks-PHT


    That big “T” word that makes everyone’s heart flutter just a bit. It’s scary, it’s unknown but when it’s spoken out loud, you just know, something is wrong. Transplant. There I said it. Did your heart skip a beat? Mine does, every time and I’ve been saying it a lot lately. So let’s talk about…

    Read more: A Partial Gift With Significant Risks-PHT
  • Can you Cure a broken heart?

    Can you Cure a broken heart?


    I don’t know but I’m willing to find out……. Katja was doing great. She had made the transition from wheelchair to walker and was slowly building her endurance back up. Her Chorea was still progressing but at a slower rate. We decided to have a talk with her Neurology team at Boston and finally caved…

    Read more: Can you Cure a broken heart?
  • ADHD and Heart kids

    ADHD and Heart kids


    Children that have gone under bypass are 5 times more likely to develop ADHD.

    Read more: ADHD and Heart kids
  • Unforeseen Complications. What is Post Pump Chorea?

    Unforeseen Complications. What is Post Pump Chorea?


    Complication. It’s a word no parent ever wants to hear after surgery.

    Read more: Unforeseen Complications. What is Post Pump Chorea?
  • What is an Ozaki? Katja’s 2nd OHS was complicated.

    What is an Ozaki? Katja’s 2nd OHS was complicated.


    During an Ozaki procedure the diseased aortic valve leaflets are removed, and a new aortic valve is recreated by sewing the leaflets into the aortic valve, providing a new functioning valve.

    Read more: What is an Ozaki? Katja’s 2nd OHS was complicated.
  • Mending Katja’s Heart Part 2

    Mending Katja’s Heart Part 2


    To say this journey hasn’t been difficult would be a lie.

    Read more: Mending Katja’s Heart Part 2
  • How is TA Repaired? Mending Katja’s heart Part 1

    How is TA Repaired? Mending Katja’s heart Part 1


    So we’ll talk a bit about Katja’s initial “repair” and how that relates to her future surgeries.

    Read more: How is TA Repaired? Mending Katja’s heart Part 1
  • About Katja

    About Katja


    Katarina Anja or as we affectionately call her “Katja” was born with a rare CHD called “Truncus Arteriosus” (TA). This means that Katja was born with only one artery into her heart.

    Read more: About Katja

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

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