Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:
It’s official! We are finally heading home after 10w2d, that’s 2.5 months of being on the East Coast 😱
We are beyond grateful for all the love and support. Katja received a special private flight home 🚀
We’ll see you tomorrow afternoon Seattle with the PNW and Childrens National’s 1st Domino Partial Heart Transplant kid! 😉
Katja didn’t spend yesterday progressing… She spent it leaping past her goals 😳 Within 2hrs of her mask being reduced to nasal cannula, Katja got up. OT came in to see how she was doing and she decided she’d had enough laying flat watching Moana 2. She made the 6 steps over to a chair…
She believed and so she did 💪🏻❤️
It’s been a long night. I haven’t slept more than 3hrs in the last 3 days. Katja had a bumpy night. Her body is still having a hard time purging the additional CO2 from Bypass. Her blood gases have been really high all night. With all her rejection meds, steroids and epi her glucose was…
We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).
Save Katja’s Heart: Urgent Flight for a Rare Transplant
Help us help Katja!
Confessions of a Mended Heart 