As always, Katja is unstoppable 🤗She’s being discharged early. She was up within 2hrs of surgery walking around the unit yesterday. She’s eating great , pain is minimal and she’s in good spirits. So she gets to come home today. She is such a Warrior 💪🏻
Welcome!
Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:
Updates
More Updates
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Getting Settled
Read more: Getting SettledWe arrived safe and sound yesterday. It was definitely a whirlwind of a day. Patient housing is situated right by Fenway park. Which means we have lots of food options to try out 😉 Katja picked Woodfire pizza for dinner and some delicious noodles for this evening. We did some grocery shopping and found a…
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cotten Candy clouds
Read more: cotten Candy cloudsUp, up and away…. We’ve departed Seattle and have had a fairly smooth flight. We are about halfway in a 5.5-6hr flight. Katja’s tired, crabby and always hungry. So it’s been a struggle keeping her entertained AND masked! 3 days to surgery, she can’t get sick now! I think the highlight of flying for her…
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Here we go again
Read more: Here we go againWell if all the chaos wasn’t enough, I received a call from her surgeon today. They had to move the date again. All her pre-op testing was moved to Tuesday (20th) with surgery now set for Wednesday (21st). Lots of moving pieces and reason why that I don’t have a chance to go into but…
Confessions of a Mended Heart 