As always, Katja is unstoppable 🤗She’s being discharged early. She was up within 2hrs of surgery walking around the unit yesterday. She’s eating great , pain is minimal and she’s in good spirits. So she gets to come home today. She is such a Warrior 💪🏻
Welcome!
Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:
Updates
More Updates
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The Heart Of A Warrior
Read more: The Heart Of A WarriorYesterday morning Katja’s Dad found her convulsing on the stairs. She was rushed to SCH. She had multiple episodes while in the ER which was determined to be an AV block. Katja entered complete heart block for 14 seconds last night. She was immediately started on isoproterenol with full cardiac watch overnight. Her teams made…
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pneumonia, Blood Counts and Hospitals
Read more: pneumonia, Blood Counts and HospitalsIt’s been a really rough few months for Katja. She started with a minor cold in late Nov that progressed to pneumonia within 2 weeks. Since then, she’s had multiple antibiotics, steroids and medication changes including significantly reducing her immunosuppressants. However, her pneumonia continues to return. This is what lead to her being hospitalized last…
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Home Sweet Home
Read more: Home Sweet HomeIt’s official! We are finally heading home after 10w2d, that’s 2.5 months of being on the East Coast 😱 We are beyond grateful for all the love and support. Katja received a special private flight home 🚀 We’ll see you tomorrow afternoon Seattle with the PNW and Childrens National’s 1st Domino Partial Heart Transplant kid!…
Confessions of a Mended Heart 