Welcome!


Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:

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  • A Partial Gift With Significant Risks-PHT

    A Partial Gift With Significant Risks-PHT


    That big “T” word that makes everyone’s heart flutter just a bit. It’s scary, it’s unknown but when it’s spoken out loud, you just know, something is wrong. Transplant. There I said it. Did your heart skip a beat? Mine does, every time and I’ve been saying it a lot lately. So let’s talk about…

    Read more: A Partial Gift With Significant Risks-PHT
  • Save Katja’s Heart: Urgent Flight for a Rare Transplant


    Help Katja! Spread the word! https://gofund.me/33c1e6e5

    Read more: Save Katja’s Heart: Urgent Flight for a Rare Transplant
  • Can you Cure a broken heart?

    Can you Cure a broken heart?


    I don’t know but I’m willing to find out……. Katja was doing great. She had made the transition from wheelchair to walker and was slowly building her endurance back up. Her Chorea was still progressing but at a slower rate. We decided to have a talk with her Neurology team at Boston and finally caved…

    Read more: Can you Cure a broken heart?

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

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