Welcome!


Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:

Updates



More Updates

  • The Calm In Our Storm

    The Calm In Our Storm


    A question I get asked often is “How are you so calm about Katja?” The answer is, well, complicated. To understand why we take all of this in stride, you first have to understand Katja’s journey. We found out at 19 weeks pregnant that Katja’s heart was not “normal”. We had months to learn, prepare…

    Read more: The Calm In Our Storm
  • A Partial Gift With Significant Risks-PHT

    A Partial Gift With Significant Risks-PHT


    That big “T” word that makes everyone’s heart flutter just a bit. It’s scary, it’s unknown but when it’s spoken out loud, you just know, something is wrong. Transplant. There I said it. Did your heart skip a beat? Mine does, every time and I’ve been saying it a lot lately. So let’s talk about…

    Read more: A Partial Gift With Significant Risks-PHT
  • Save Katja’s Heart: Urgent Flight for a Rare Transplant


    Help Katja! Spread the word! https://gofund.me/33c1e6e5

    Read more: Save Katja’s Heart: Urgent Flight for a Rare Transplant

About Us


We are a fun loving family of 7. I’m Jenn, the Mom and words behind the blog. Dad Jori is the IT backbone of making sure I don’t go crazy over features. We have 5 beautiful children. Nevaeh (17), Twins Arianna & Araceli (15), Katja “Our Mended little Heart” (9) and Gryffin “Finn” (4).

Save Katja’s Heart: Urgent Flight for a Rare Transplant

Help us help Katja!

Search our Blog


Subscribe


Recent Updates


Recent Posts