As always, Katja is unstoppable 🤗She’s being discharged early. She was up within 2hrs of surgery walking around the unit yesterday. She’s eating great , pain is minimal and she’s in good spirits. So she gets to come home today. She is such a Warrior 💪🏻
Welcome!
Welcome to Katja’s blog. A place for information, updates and our “laugh instead of cry” humor of living with a child with CHD (Congenital Heart Defects). Take a seat and prepare for a long emotional journey of our ups and downs. Feel free to browse posts about Katja, her heart and her previous surgeries. Newest updates are available below:
Updates
More Updates
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Tick Tick
Read more: Tick TickIt’s been a long week. Shortly after we arrived Katja crashed and went to bed early. The next morning she was completely exhausted. Very tired and crabby. We were prepared for her having some jet lag but this was much worse. Over the next week her appetite disappeared (she’s on medication to stimulate it), she…
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Up Up and Away
Read more: Up Up and AwayWriting this from inside a plane that up until 48hrs ago I never thought we’d achieve, is a bit surreal. I think we as a family are still very much processing everything that just happened. From feeling hopeless just a few days ago, discussing emergency back up plans that we knew had significant risks to…
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To You Amazing People
Read more: To You Amazing People*****UPDATE***** Katja’s flight to North Carolina has been fully funded! With the help of all of you amazing donors! We’ll be flying out on Friday to await her partial heart transplant at a hotel by Duke Children’s hospital. We are still working on her return flight when she will be post surgery on full immunosuppressants…
Confessions of a Mended Heart 